Vicki and Jayden are here from Alaska it has made it more fun for us. Another bitter sweet.
Jayden is having seizures again every five to ten minutes I feel so bad for her and Vicki. If ever I start feeling sorry for our situation I think of Vicki and Jayden having to deal with what they. They are amazing. I think of Michael and Angie losing their baby without being able to say goodbye.
There are a couple of other kids that I have met here. One of which has been here since May and he is pretty much her to die. They are giving treatment to allow his death to be as painless as possible.
One baby who is twelve days old, was born with all of his organs outside of his body as well as his stomach and with no anus. He has recieved four surgeries in the first twelve days of his life. The hospital is not too bad now. The worst was when they were having her fast so that they could sedate her. Also we got her pick line in having to have eight different Iv's.
It was so cute when Jake came in and announced to the room, "Hey guys. You have to wake her up before you poke her." That is one of the saddest things that I have ever seen. Jake was about ready to physically take out a nurse. Travis' family has been so supportive. Jake, Amber, both of our Moms, Jaymi, and Dona for taking care of the kids, and Liz with helping communicate to everyone of what is happening with Arianna. I feel so sorry for Ari because her vains are so small and they cant find them. Even the IV team did not want to poke her.