Just wanted to say I am so sorry that you lost your beautiful little girl. I had been following your story on Facebook for a while hoping against hope that she would make it through this terrible disease. I read your blog last night and I was so moved. I had tears streaming down my face, tears for Ari, tears for you and your family, and tears probably also for me and my daughter who died after BMT for HLH in July at just 22 months.
Little Ari sounded like the sweetest, bravest and most beautiful little child. I am heartbroken for you all. There are so many parallels with your experience and ours...
I know nothing I say will help take the pain the away but if you ever need to talk to another mum, just write.
Wishing you and your family lots of love Kelly xx (from London, UK)