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Langerhans' cell histiocytosis (LCH)
It can effect children of any age, and is more common in boys than girls.
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Travis and Haley Lane Family
Travis, Haley, Kaley, Taylor, Alaina, Arianna
My name is Tammy Zimmermann. My 9 yo daughter also has LCh. Her site is www.caringbridge.org/visit/princessbreezie. I am aslo on facebook at ncqtpietammy@hotmail.com. We are praying for Ari. Another LCH parent found this blog tonight and we have a huge histio community or family as like to call ourselves on facebook that pray pray pray and lift each other up. We are praying for your little precious Ari tonight. I am so sorry this is happening but we trust a God that heals!!!!!!!!!!!!
ReplyDeleteGod bless you precious Ari!!!!!!!!!
Hello, my name is Sharon Danners and I am the grandmother of an LCH Angel ^^Aamari^^. We have had so much support from all of our Histio families on FB and Caringbridge and that's where I saw your story. I know exactly how you are feeling and my thoughts and prayers are with you all. Ari is a beautiful, precious baby girl..this disorder takes a toll but keep your faith and strength. The battle is long and hard but there are winners!! You can find our story @ www.caringbridge.org/visit/aamari and i too am on facebook @ leggz510@embarqmail.com,,God bless you and hold you during your time of need.
ReplyDelete^^Aamari's^^ Nanny