My name is Tammy Zimmermann. My 9 yo daughter also has LCh. Her site is www.caringbridge.org/visit/princessbreezie. I am aslo on facebook at firstname.lastname@example.org. We are praying for Ari. Another LCH parent found this blog tonight and we have a huge histio community or family as like to call ourselves on facebook that pray pray pray and lift each other up. We are praying for your little precious Ari tonight. I am so sorry this is happening but we trust a God that heals!!!!!!!!!!!! God bless you precious Ari!!!!!!!!!
Hello, my name is Sharon Danners and I am the grandmother of an LCH Angel ^^Aamari^^. We have had so much support from all of our Histio families on FB and Caringbridge and that's where I saw your story. I know exactly how you are feeling and my thoughts and prayers are with you all. Ari is a beautiful, precious baby girl..this disorder takes a toll but keep your faith and strength. The battle is long and hard but there are winners!! You can find our story @ www.caringbridge.org/visit/aamari and i too am on facebook @ email@example.com,,God bless you and hold you during your time of need.^^Aamari's^^ Nanny