Hello Everyone,
We have been receiving multiple emails, texts and phone calls asking us for an update with Arianna. Many have said that they check the blog frequently but nothing new has been added for a while. We do apologize unfortunately, the last 3 months have been very intense with Arianna and we have also had a new baby arrive. So I am going to do my best to update my information. I usually like to go through my sister Liz because I am not the best when it comes to spelling and punctuation. For example I have been writing lip nodes not lymph nodes so Liz will usual correct my mistakes before she publishes what I wrote. (where were you on lip nodes Liz)
I am mainly going to post pictures and explain, Haley is going to write the details of the latest events.
Arianna has touched my life in so many ways I really do not have words to explain, I guess that is why these pictures may explain better. It has been a very bitter and a very sweet journey these last 18 months and I am sure the bitter sweet will continue. I have to gratefully admit that I have not complained in word or actions these last 18 months I have continued to hold my spirits high however, just the other day I was with my sisters, Liz and Vicki and my mother. I unloaded for about 30 minutes and they empathetically listened with all of the love in the world. Haley and I really hope that all of you feel the love and appreciation for your prayers, love and support. There is no question that we are blessed from you and your prayers and fastings. Thank you very much!
Wednesday, October 20, 2010
Saturday, October 9, 2010
Bone marrow time
We are getting ready for her transplant. Alaina is a complete match. She is exited to take a brake from school and come up with Mom. She doesn't quite know that it will hurt.
Wednesday, September 8, 2010
Sunday, September 5, 2010
Email from Travis
Date: Mon, 30 Aug 2010 17:31:13 -0700
From: jtlane1976@yahoo.com
Subject: Ari update
Hello Everyone,
Just a quick update about Ari. Some of you may know that we have been in and out of the hospital for the last 7 weeks, mainly in St. George. But we have been at Primary Childrens since Thursday (August 26, 2010). Mom was up here with me while we spent over a day in ICU. Haley couldn't take it anymore remaining in St. George so she came up yesterday evening. She was staying in St. George because she is due any day to have the baby. Actually her due date is on the 4th of September. But she has always been 10 days late with all of the other kids. Anyways we have decided to have both of us up here at PCH and have made arrangements that if she does go into labor we literally just have to walk over to the University Hospital. We won't even have to go outside and get into a car. The kids are with Grandma Bradshaw. They are on their second week of school and they really like it. Taylor is playing contact football and Haley recorded his games last Saturday and without being an unbiased father, he is unbelievable!
Ari is definitely struggling. The list of her infirmities is very long and the discomfort and pain that it is causing to her body is very sad. It is not just one single symptom that is killing her it is a multitude of diseases, viral's, bacterias and infections. Just one of those symptoms would bring me to my knees begging God to take my spirit to allow my physical body to be alleviated from the pain.
She has herpes that has infected her mouth down her throat through her digestive tract all the way to her rectum. She also has a viral called EBV. I forget what it stands for, but it is causing her body to not be able to heal and reproduce white and red blood cells. She also has staph and strep--not the normal strep that most people get but the kind that eats through your skin and organs. Obviously the pain of all of these is extremely painful. I am seriously blown away of how she continues to bare it.
The cancer has moved into her jaw on both sides and into the base of her skull as well as into her lip nodes. So now the LCH is in her liver, lungs, kidneys, spleen top of her skull, the base of her skull her jaw and her lip nodes. The doctors were joking today saying that this is a new disease and it should be named after Ari. But they were serious when they said that they had never seen anything like this and they are amazed as to how she continues to fight this disease.
The plan now is to get her healed of the Herpes, staph, strep, and EBV. Once she is healed of those bacterias, virals, and infections then they are going to work on the Cancer. They are very concerned about the cancer in the lip nodes especially because that will aggressively spread and it is a large chance that it is in her bone marrow. So we are closer to the bone marrow transplant and hopefully the new baby's placenta will match. If not we will start with Taylor then Kaley then Laney. Then, if they don't match we will move on to Ron and Vicki's kids (LOL).
I did not know that bone marrow transplant was so risky. The doctor explained the risks of the transplant and now I understand why it is the very last resort.
Thanks for all of your help and love.
Love
Travis
From: jtlane1976@yahoo.com
Subject: Ari update
Hello Everyone,
Just a quick update about Ari. Some of you may know that we have been in and out of the hospital for the last 7 weeks, mainly in St. George. But we have been at Primary Childrens since Thursday (August 26, 2010). Mom was up here with me while we spent over a day in ICU. Haley couldn't take it anymore remaining in St. George so she came up yesterday evening. She was staying in St. George because she is due any day to have the baby. Actually her due date is on the 4th of September. But she has always been 10 days late with all of the other kids. Anyways we have decided to have both of us up here at PCH and have made arrangements that if she does go into labor we literally just have to walk over to the University Hospital. We won't even have to go outside and get into a car. The kids are with Grandma Bradshaw. They are on their second week of school and they really like it. Taylor is playing contact football and Haley recorded his games last Saturday and without being an unbiased father, he is unbelievable!
Ari is definitely struggling. The list of her infirmities is very long and the discomfort and pain that it is causing to her body is very sad. It is not just one single symptom that is killing her it is a multitude of diseases, viral's, bacterias and infections. Just one of those symptoms would bring me to my knees begging God to take my spirit to allow my physical body to be alleviated from the pain.
She has herpes that has infected her mouth down her throat through her digestive tract all the way to her rectum. She also has a viral called EBV. I forget what it stands for, but it is causing her body to not be able to heal and reproduce white and red blood cells. She also has staph and strep--not the normal strep that most people get but the kind that eats through your skin and organs. Obviously the pain of all of these is extremely painful. I am seriously blown away of how she continues to bare it.
The cancer has moved into her jaw on both sides and into the base of her skull as well as into her lip nodes. So now the LCH is in her liver, lungs, kidneys, spleen top of her skull, the base of her skull her jaw and her lip nodes. The doctors were joking today saying that this is a new disease and it should be named after Ari. But they were serious when they said that they had never seen anything like this and they are amazed as to how she continues to fight this disease.
The plan now is to get her healed of the Herpes, staph, strep, and EBV. Once she is healed of those bacterias, virals, and infections then they are going to work on the Cancer. They are very concerned about the cancer in the lip nodes especially because that will aggressively spread and it is a large chance that it is in her bone marrow. So we are closer to the bone marrow transplant and hopefully the new baby's placenta will match. If not we will start with Taylor then Kaley then Laney. Then, if they don't match we will move on to Ron and Vicki's kids (LOL).
I did not know that bone marrow transplant was so risky. The doctor explained the risks of the transplant and now I understand why it is the very last resort.
Thanks for all of your help and love.
Love
Travis
Tuesday, August 31, 2010
August 31, 2010 Facebook Feeds
Haley Lane said: Ari hasn't had a fever in a while. so that is really exciting. thanks for all the prayers.
August 31 at 6:30pm via Facebook for BlackBerry · Comment ·LikeUnlike · View Feedback (25)Hide Feedback (25)
12 people like this..
Kristi Lane Niu Just want you to know we love you guys and think and pray for you often. Give Ari a hug from her cousins in AZ
August 31 at 6:32pm · LikeUnlike.
Tammy Swayngim Zimmermann Thank God awesome news
August 31 at 6:33pm · LikeUnlike.
Sharon Danners That's fantastic Haley!!! Bless her heart!!! ;)
August 31 at 6:37pm · LikeUnlike.
Jacki Barbe That is wonderful.. GOD IS THE ALMIGHTY HEALER..PRAYERS WORK...TY LORD... Still praying..
August 31 at 6:44pm · LikeUnlike.
Jackie Hodge Great news Haley!!! Praying every day!!
August 31 at 6:46pm · LikeUnlike.
Tina Riehle Yay! That's awesome!
August 31 at 7:23pm · LikeUnlike.
Christina Taylor That's so awesome! Prayers work! Still praying for her....love you all!
August 31 at 7:40pm · LikeUnlike.
Keena Argo Ortiz Great news! Praying much more is to follow.
August 31 at 8:42pm · LikeUnlike.
Lelynn Parys wonderful!
August 31 at 8:50pm · LikeUnlike.
Bobbi Matty Kaufman Good news! We all will continue praying.
August 31 at 9:51pm · LikeUnlike.
Amber Parten Continue praying..
September 1 at 7:28am · LikeUnlike.
Nicole Maslonka Henderson Still praying for little Ari..
September 1 at 7:48am · LikeUnlike.
Jacki Barbe TY U LORD!!! TY U LORD!!!! GOD IS GREAT!!!!!
August 31 at 6:30pm via Facebook for BlackBerry · Comment ·LikeUnlike · View Feedback (25)Hide Feedback (25)
12 people like this..
Kristi Lane Niu Just want you to know we love you guys and think and pray for you often. Give Ari a hug from her cousins in AZ
August 31 at 6:32pm · LikeUnlike.
Tammy Swayngim Zimmermann Thank God awesome news
August 31 at 6:33pm · LikeUnlike.
Sharon Danners That's fantastic Haley!!! Bless her heart!!! ;)
August 31 at 6:37pm · LikeUnlike.
Jacki Barbe That is wonderful.. GOD IS THE ALMIGHTY HEALER..PRAYERS WORK...TY LORD... Still praying..
August 31 at 6:44pm · LikeUnlike.
Jackie Hodge Great news Haley!!! Praying every day!!
August 31 at 6:46pm · LikeUnlike.
Tina Riehle Yay! That's awesome!
August 31 at 7:23pm · LikeUnlike.
Christina Taylor That's so awesome! Prayers work! Still praying for her....love you all!
August 31 at 7:40pm · LikeUnlike.
Keena Argo Ortiz Great news! Praying much more is to follow.
August 31 at 8:42pm · LikeUnlike.
Lelynn Parys wonderful!
August 31 at 8:50pm · LikeUnlike.
Bobbi Matty Kaufman Good news! We all will continue praying.
August 31 at 9:51pm · LikeUnlike.
Amber Parten Continue praying..
September 1 at 7:28am · LikeUnlike.
Nicole Maslonka Henderson Still praying for little Ari..
September 1 at 7:48am · LikeUnlike.
Jacki Barbe TY U LORD!!! TY U LORD!!!! GOD IS GREAT!!!!!
Saturday, August 28, 2010
I'm having a hard time tonight. I have never been away from her. But since the baby is due any day,Travis took her up this time. She almost died tonight. They are now in intensive care. I've always said to myself it would be ok if she skipped of to heaven. She is in so much pain I would have to be really selfish to not want her to receive relief. Tonight I realized that I still feel the same way but if it is going to happened I want it to be in my arms. I think the only reason I'm ever strong is because I have this amazingly strong spirit nestled in my arm and my spirit just feeds of her's. She is so amazing in every way. I am so grateful for her. Thank you Heavenly Father for sending me such a beautiful angel.
I'm sure every thing will seem brighter in the morning.
but for now thanks for all the prayers.
I'm sure every thing will seem brighter in the morning.
but for now thanks for all the prayers.
Sunday, June 6, 2010
Being Home
I have not blogged for a long time because I have been busy being home. It still feels like a vacation.
We had a doctors appointment last Thursdays. I was very exited. She has been doing so well. She is so happy and so active. It makes me so happy. I was hoping that all the chemo rounds had gotten the decease out of her body. That was not the case her counts had dropped, we didn't need a transfusion "barely". Her ultra sound showed no difference in her liver and spleen. Doctor Fluchell said he wasn't going to go off that to much because it is so obvious that her stomach has gone down.
Over all it was a rough day. Ari was so mad we were even there. While we were talking about stuff that wasn't the greatest, she all of a sudden started freaking out. Clearly she couldn't understand what we were saying, maybe it was our tone.
The game plan from here is a maintenance plan of 3 different types of mild chemos all done out patient every three weeks. Then if that doesn't work she will receive two rounds of the most intense chemo she can handle followed by a bone marrow transplant. They said because of the type of transplant she would need it would need to be a sibling. Even then it is a 25% chance that they will be a match. They said every once in a million a complete stranger will have her match. They were really exited that I was pregnant because of the cord blood. Because of our situation it would be free. Dr. Druscull said it cost about $500 a year to store it. Amber had told me about all the amazing things they are doing with cord blood and cancer. It is pretty interesting.
So that was our day at clinic. I'm still hopeful. Maybe we won't need the second plan. The only thing that makes me nervous is that it is still in her and last time our maintenance plan didn't go so well, but you can't loose hope right. Every day I'm very very happy watching her being so happy. I am so grateful and blessed. I have to say I really completely enjoy my life.
We had a doctors appointment last Thursdays. I was very exited. She has been doing so well. She is so happy and so active. It makes me so happy. I was hoping that all the chemo rounds had gotten the decease out of her body. That was not the case her counts had dropped, we didn't need a transfusion "barely". Her ultra sound showed no difference in her liver and spleen. Doctor Fluchell said he wasn't going to go off that to much because it is so obvious that her stomach has gone down.
Over all it was a rough day. Ari was so mad we were even there. While we were talking about stuff that wasn't the greatest, she all of a sudden started freaking out. Clearly she couldn't understand what we were saying, maybe it was our tone.
The game plan from here is a maintenance plan of 3 different types of mild chemos all done out patient every three weeks. Then if that doesn't work she will receive two rounds of the most intense chemo she can handle followed by a bone marrow transplant. They said because of the type of transplant she would need it would need to be a sibling. Even then it is a 25% chance that they will be a match. They said every once in a million a complete stranger will have her match. They were really exited that I was pregnant because of the cord blood. Because of our situation it would be free. Dr. Druscull said it cost about $500 a year to store it. Amber had told me about all the amazing things they are doing with cord blood and cancer. It is pretty interesting.
So that was our day at clinic. I'm still hopeful. Maybe we won't need the second plan. The only thing that makes me nervous is that it is still in her and last time our maintenance plan didn't go so well, but you can't loose hope right. Every day I'm very very happy watching her being so happy. I am so grateful and blessed. I have to say I really completely enjoy my life.
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